“For years he needed 24hr a day care, and during that time we were lucky to get a couple of hours sleep. It can be a rollercoster. For a while things begin to improve, but it can all change at a moments notice. Love can conquer a great deal, but when you lose sleep, it becomes easy to lose hope. You eventually reach a breaking point.”
Natalie Waddell

Natalie and Gordon Waddell have a first hand understanding of the need for Hummingbird House.

Their son Tommy has IP36 Deletion Syndrome. He is a charismatic, sweet and delightful young boy.  Due to the nature of Tommy’s condition his lifespan is unknown.

The Waddells journey is one that is shared by thousands of families in Queensland.

“When you receive the diagnosis, all normality and certainty in your life is gone. We want to give Tommy the best quality of life possible, and be the parents he deserves, but it’s hard.

For years he needed 24hr a day care, and during that time we were lucky to get a couple of hours sleep. It can be a rollercoaster. For a while things begin to improve, but it can all change at a moments notice. Love can conquer a great deal, but when you lose sleep, it becomes easy to lose hope. You eventually reach a breaking point.

Your days become filled with medicine regimes, physical therapies, doctors appointments, equipment alarms and emergency trips to and from hospitals. There have been moments when you just hope and pray that you, and your child can make it through another day. In those moments you quickly forget about creating the moments that make life worth living.

Hummingbird House will change our lives. More than just rest, they’ll give us the chance to go out and create special moments we’ll remember forever.”

You can learn more about the Waddell’s story in the video below: